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We're Partnering With The Mighty to Help People with Leukodystrophy!
We're thrilled to announce a new partnership that will bring our resources in front of The Mighty's wide-reaching readership. We wil
Reframing Hope: Children's Hospice and Pediatric Palliative Care
We were so pleased to work with the Washington DC based filmmaker Rachel Feichtner of Brave Girl Productions on this video titled...
"Don't give up"
Not long ago, I found myself speaking to a program administrator at the FDA. It was a classic elevator pitch, I told him all about the...
Super Gav's Story
Gavin at age 4, before transplant. Ali and Gavin, post-transplant, Christmas 2014. My son Gavin Quimby loves superheroes, particularly...
